Update Dear Bunnies -
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I am sitting here with the first infusion of drugs in my system (finally). It has seemed like forever to get to this point. Yesterday I got Ipilimumab, which is called Yervoy (UHR-voy, which is how the nurse pronounced it). I had never been in a "chemo" room before. . .
Three more doses of this drug, 3 weeks apart. Then I wait a few weeks then get scanned. If needed, then a course of the newer drug, which just got approved and the name of which escapes me.
The last radiation appt was on Tuesday of this week, and they tell me that I could be wiped out from this for another two weeks then slowly improve. I still have back pain when I am up and still wear this humongous brace, and will into October. I am up more and more though, and a bit more active as time goes on. When I am lying in bed, still, I feel no pain, and have moments when I feel like my old athletic self, able to do stuff I had been doing. Then I get up and remember. :-) Well, hopefully I will get some of this back.
So now, paying a lot of small bills (thank goodness for good insurance!), watching for side effects, naps, resting, reading, eating and going to the gym for "executive workouts" (steam room and shower) are what mostly comprise my days.
Thank you all for the continued interest and support. I have tried to winnow this list to those who have stated the desire to be on it. Although a few of you, I have not given the choice. :-)
Vicki continues to be heroic. . .I would not be making it through this without her.
More later. . .