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17 July 2008

Greetings from the new normal. [More:]So, my dad had a doctor's appointment yesterday, a court intake date this morning, a first appointment with a neurologist later this morning, and a follow-up with his internist this afternoon.

Yesterday his G.P. convinced him (or my mom and I, really) to stop his self-medication with everything from antacid to acetaminophen.

This morning I took him to court. We were early, of course, for an 8 a.m. call. He had been potentially charged with O.W.I. for driving with all his meds (though an ethanol test came back negative, he was on a run do get more vicodin), but they understood that he has cognitive issues and very kindly only gave him two tickets -- for damaging county property (three signs) and not reporting an accident. He didn't want to sign the voluntary license surrender, and his G.P. told him there was no way she could give him a "pass" on the medical questionnaire. So he didn't get his license status resolved by intake, which could have meant avoiding court altogether. But he doesn't want to plead guilty, because he says he was trying to stop the cop to report it. Possibly true, but basically irrelevant, as he was driving a wrecked vehicle down a city street at 3 or 4 a.m.

Anyway, the first thing was that he didn't understand the metal detector and security check. He took all his stuff out of his pockets, then expected the bailiff to give them right back to him. "I need my glasses!" I tell him (from the other side) that I *already have* his glasses.

Then we are in the court room, and I take the opportunity to go over to the windows to look over the downtown. I turn around, and he's disappearing through the door to the judges' chambers! I drag him back from there. "I need to tell them I have a medical appointment," he objects. I tell him if he wanders around the courthouse, he will get arrested. He scoffs but sits down.

Then he wants to write a note to the judge on his business card and doesn't have a pen, so next thing I know he's up at the dais rummaging around where the clerks sit! I drag him back again. When the bailiff appears, he goes up to the guy, mentions the doctor, and gets told "Everybody in this room has someplace else they'd rather be, sir."

Finally when he gets before the commissioner, he is so confused by the procedure -- he has an option to plead guilty/no contest here and pay a fine, but any dispute or modification of the charges requires a new court date before a judge -- that people in the courtroom are laughing at him. I had stayed seated because one husband and one mother had already been reproached by the commissioner for interjecting themselves into proceedings, but I will probably have to be up there as "interpreter" at least next time. He keeps trying to show the commissioner his large-size county map and insisting that the charges are incorrect, so the commissioner has to enter a "presumably not guilty plea". (The cornrowed gangbanger next to me says "What a clown!")

Then we go to the neurologist. First thing is that, having stopped at home, he wants to leave for the clinic right away. Two or three times he forgets that I have said I'm staying through his appointmnet, but he thinks I'm dropping him off. I'm trying to prune some yews to make use of the half hour, but he wants to sit in the van in the hot sun and nag me until I agree to drive him over there 20 minutes early. (Well, there are worse things on a day like today than sitting in an airconditioned lobby, but I have a long to-do list.) As the nurse seats him he has to have doing a self-blood pressure monitor explained to him (he used to do it daily). Then he asks for the door to be open so he can watch for my mother, and the nurse explains that HIPAA requires them to close the doors for patient privacy. (He never gets this. He wants to kibitz within a foot or two while a nurse is dealing with someone because he "just has a quick question", and gets miffed when they "rudely" tell him to step back.)

The neurologist has reviewed his EEG from last week and says it's basically normal. He rules out Alzheimer's at this stage and gives us a diagnosis (the first real one!) of "mild cognitive impairment", which can develop into it but not exclusively. There will be more tests for vascular causes. During this, my mom mentions that he has had personality changes, and my dad pulls a classic mincing passive-aggressive non-sequitur, "I should mention that I'm not the only one in this family who has undergone a personality change!" The doctor looks at my mom and me, then says carefully, "Perhaps, but you are the only one in this family who is my patient." He was also proudly showing the doctor the juvenile library book on Alzheimer's he was reading, which my mother had taken out for my impaired nieces.

We have to wait until October for the big-city hospital neuropsychologist to give him the workup. (Damn socialized medicine! Er .... wait ....) He still has to go back to court. But at least we have a diagnosis for now.

The capper was that he insisted on staying at the clinic until his 2 o'clock, but 15 minutes ago he called me and said "They changed it to 2, so you should come then." I told him it was ALWAYS at 2. I guess letting him wander around the clinic for three hours was a worse idea than I thought (and I didn't think it was a good one to begin with, but per the passive-aggression, he's no fun to argue with.)

And, oh yes, we had some prospective new tenants yesterday, but then they turned out to have an eviction this year already. And I overheard the grandson of the nice Hispanic grandmother who is, but isnt' supposed to be, living with her making a business arrangement with a black gangbanger who reveled in the black-Hispanic aspect of their alliance and then suddenly said, "Don't cross me, or I'll fuck you up, and my friends will fuck you up worse."

She's a sweet lady, but we can't have her if she's a pushover for drug dealers in her family.
Oh. . .
posted by rainbaby 17 July | 13:26
Jeez, that's a tough bunch of circumstances. You're doing the right thing, and you should be proud. Stay strong.
posted by Hugh Janus 17 July | 13:31
Oh, stilicho, that's a lot to cope with all at once. And, still, you're coping with it! Yes, as Hugh says: you should be proud.
posted by Elsa 17 July | 13:37
Holy crap, stilicho. That is a lot to deal with. Much strength to you and your mom. I hope they can figure out a way to treat some of your dad's symptoms.

Big hug, good vibes.
posted by mudpuppie 17 July | 13:39
He's lucky to have you, whether he knows it or not.
posted by ethylene 17 July | 13:42
(((stilicho)))
posted by chewatadistance 17 July | 13:58
Oh stilicho, what a huge couple of days. You're a sweetie.
posted by goo 17 July | 16:21
This new normal - it sucks.

I'm reading your post and am totally amazed at your calmness - or is that just numbness...

Find some time to look after yourself. It's so easy to get lost in all the caregiving.

HUGS
posted by mightshould 17 July | 16:26
Thanks, everyone.

mightshould, we've had time to adjust. We've known my dad had memory/cognitive issues for a couple of years but he resisted getting diagnosed. Sadly, the car wreck he got in that could have killed him is what it took for us to have an excuse to force him.

I should add that while he and my mom had their differences, he wasn't a Bickerson until after his cancer surgery in '03.

And yeah, I seem to have preternatural coping skills, but that's only because I've totally put my own life issues on hold. It's like they don't exist. Weird.
posted by stilicho 17 July | 16:51
((((((((((stilicho)))))))))))
posted by redvixen 17 July | 19:23
*hug*
stay strong.
You might want to call a local senior center, or a social worker who specializes in geriatrics. There's therapies that can help your dad with his memory now, to keep him from going downhill too fast, or programs he can be in during the day when there might not be someone around all the time to keep an eye on him. A lot of areas have senior "day care" facilities.
A site like this might help.

FWIW, my mom works in geriatrics, and there are a lot of options that come well before assisted living that people don't often look into which can be a HUGE help in easing the pressure on you and your mom.
posted by kellydamnit 17 July | 20:28
Holy crap. Stay strong, man.
posted by me3dia 17 July | 23:34
Aw, stilicho. I can't imagine how hard this must be. If you need to pour your heart out to a stranger from the internet, my email is in my profile.
Big hugs to you.
posted by jrossi4r 18 July | 00:30
Oh man.

All courage and strength.
posted by tangerine 18 July | 16:18
Dr. Horrible - did we do this one? || oh. my. god. I want to be Helen Mirren.

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