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04 September 2014

An Update Dear Adored Bunnies-[More:] I survived another week of radiation - one more week to go. It involves showing up, scanning a card, then putting on a hospital gown (which I resent. . .a t shirt would work just as well. . .) and then, either waiting a long time, if they are backed up, or going in a spending about 5-10 minutes on the table.

I had a sit-down with the oncologist this morning, and I am scheduled to start immune therapy on September 18. It will be a drug called Yervoy. Side effects are infrequent, but also extremely severe. If my tumors are unresponsive, then there is another emerging drug without a name yet that can be tried, with fewer side effects.

The statistics are on the other side of good, but there is not a lack of hope. People DO get better, or at least hold off the disease for a number of years. And as I keep repeating, am in pretty good shape, and my overall tumor load, according to the Dr, is low.

I got the staples out yesterday, finally. Huge incision down my thoracic spine. I have to keep wearing this brace for another 6 weeks, though. My weight is down, but I have also cut out wine (damn) and have a feeling that this huge incision is burning up a lot of calories healing. Oh, and I have fucking cancer.

Most people, online or in person, have been wonderful. But also any number of people have a cure, or something else to push on me. The day after my surgery, I was laying in my hospital bed, and this acquaintance from volleyball slowly enters the room, looking at me like she's getting her last view of me. Wife and Daughter were there, hanging out with me. This person hands me this book "Proof of Heaven," with wishes that it may bring me some comfort. I am one of those people who are insufficiently quick to anger, so I look at it and thank her and say that it looks interesting. When she finally leaves, with one last forlorn look, my atheist daughter says, "Dad, your self control is a lot better than mine." My wife took the book and put it in a free bin back in town.

But you all have been lovely. Thank you again for the thoughts, prayers (any religion) and messages.

Danf, I didn't realize, I must not have been here much recently. I will keep you in my thoughts. I am sorry that this is happening to you. I am glad that you have supportive family and friends (other than that one dope).
posted by amro 04 September | 17:37
Thanks for stopping by! We are all thinking of you.
posted by ThePinkSuperhero 04 September | 18:17
You are so great for updating us here! I am really glad the staples are out and there is a plan now with your oncologist.

Please let us all know what we can do besides thinking of you very often with great hope.
posted by bearwife 04 September | 18:48
Great update. It sounds like you're working really hard on getting better. I am really glad to hear that you're not in such pain with your back. You have indeed been in my thoughts and prayers.

I know what you mean about well-meaning people. We have a special needs child and people are always giving us things to read or miracle cures or telling us that God never gives us more than we can handle or that we're special parents to have a special child and I just nod and privately roll my eyes and move on. That was an especially lousy thing of your volleyball friend to drop on you although he probably meant well. But still.

Keep us posted and keep fighting the good fight. And geez, can't you have a sip of wine now and then? It's medicinal!
posted by Kangaroo 04 September | 18:53
Thanks so much for the update, my friend. You are in my thoughts every day.
posted by Senyar 04 September | 18:59
Lots of things are in motion. Glad to hear from you. Thinking about you!

And yeah, people are 100% clueless about how to interact when there are problems. I think you handled it very, very graciously.
posted by Miko 04 September | 22:46
I wish you well Dano. My wifes best friend just started her first round of chemo today. I have good thoughts for you both.
posted by arse_hat 05 September | 01:53
Thinking of you. Thank you for the update.
posted by needlegrrl 05 September | 08:59
Sending good thoughts.
posted by Twiggy 05 September | 09:39
Scody used Lotsa Helping Hands after her surgery. Is there help those of us nor nearby can give?
posted by brujita 05 September | 10:45
Thanks for the update!
Hope you beat the odds and come out of this ok.
It's very generous of you to deal nicely with the people who are doing and saying the wrong things, I'm not sure I could be so graceful.
posted by rmless2 05 September | 15:08
Thanks for the update - thinking of you a lot and glad to see you're staying as positive as you can. You did a good thing in how you responded to someone giving you something that, if they really knew you, they would know would be completely unhelpful. People usually don't know how to react to this sort of thing and tend to fall back on what they think would help them, I think.
posted by dg 05 September | 15:23
I'm with your daughter -- you were very gracious, Dan. I'd have thrown the book at her head. But I'm an ornery cuss. ; )

I think that must be one of the worst aspects of being sick, especially the dreaded "C" word. People acting all weird around you. I've been lucky enough to not experience serious illness yet ("yet" -- as I near 50, with my family history, I expect it anytime, I'm afraid), but I saw my father, in particular, going through it (colon cancer). I admire your compassion and humor.

Fingers crossed for the immune therapy, and warm thoughts, always.
posted by Pips 05 September | 17:46
I'm with your daughter -- you were very gracious, Dan. I'd have thrown the book at her head. But I'm an ornery cuss. ; )

I think that must be one of the worst aspects of being sick, especially the dreaded "C" word. People acting all weird around you. I've been lucky enough to not experience serious illness yet ("yet" -- as I near 50, with my family history, I expect it anytime, I'm afraid), but I saw my father, in particular, going through it (colon cancer). I admire your compassion and humor.

Fingers crossed for the immune therapy, and warm thoughts, always.
posted by Pips 05 September | 17:46
(oops -- I suppose it bared repeating : )
posted by Pips 05 September | 17:50
I'm glad to hear that you have such a loving supportive family. My best wishes to you all.
posted by mightshould 05 September | 18:57
You're in my thoughts as well. Go kick ass.
posted by pjern 05 September | 23:34
Radiotherapy was pretty draining when my Dad had it, but he bounced back when it's over. Glad you're OK-ish for the circumstances, hang in there.
posted by TheophileEscargot 06 September | 08:30
Thanks for the update, and I do admire your self-control. Illness is such chaos. Thinking of you.
posted by rainbaby 07 September | 17:50
Thank you for the update; I know we want to know how you are. I hope that annoying incision heals fully very fast!
posted by redvixen 07 September | 21:32
I haven't been around and didn't know you had cancer. May I send you a copy of my book "Proof of Hell"? (ducks)

I'm sure you look hella sexy in the hospital gown. Heal swiftly and be well.
posted by theora55 10 September | 19:02
Danf, I haven't been around for a while so I didn't know about this. Strength and health to you and your loved ones.
posted by matildaben 12 September | 11:38
Bad/Good. Let's play! || NYC Etiquette Explained in Cartoons

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